Research Infrastructures and Registries

Visualizing Patient Pathways and Identifying Data Repositories in a UK Neurosciences Center: Exploratory Study

Jo Knight, Vishnu Vardhan Chandrabalan, Hedley C A Emsley

JMIR Med Inform 2024 (Dec 24); 12:e60017

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Building a Foundation for High-Quality Health Data: Multihospital Case Study in Belgium

Jens Declerck, Bert Vandenberk, Mieke Deschepper, Kirsten Colpaert, Lieselot Cool, Jens Goemaere, Mona Bové, Frank Staelens, Koen De Meester, Eva Verbeke, Elke Smits, Cami De Decker, Nicky Van Der Vekens, Elin Pauwels, Robert Vander Stichele, Dipak Kalra, Pascal Coorevits

JMIR Med Inform 2024 (Dec 20); 12:e60244

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Improving Participant Recruitment in Clinical Trials: Comparative Analysis of Innovative Digital Platforms

Alexia Georgia Bikou, Elena Deligianni, Foteini Dermiki-Gkana, Nikolaos Liappas, José Gabriel Teriús-Padrón, Maria Eugenia Beltrán Jaunsarás, Maria Fernanda Cabrera-Umpiérrez, Christos Kontogiorgis

J Med Internet Res 2024 (Dec 18); 26:e60504

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Information Mode–Dependent Success Rates of Obtaining German Medical Informatics Initiative–Compliant Broad Consent in the Emergency Department: Single-Center Prospective Observational Study

Felix Patricius Hans, Jan Kleinekort, Melanie Boerries, Alexandra Nieters, Gerhard Kindle, Micha Rautenberg, Laura Bühler, Gerda Weiser, Michael Clemens Röttger, Carolin Neufischer, Matthias Kühn, Julius Wehrle, Anna Slagman, Antje Fischer-Rosinsky, Larissa Eienbröker, Frank Hanses, Gisbert Wilhelm Teepe, Hans-Jörg Busch, Leo Benning

JMIR Med Inform 2024 (Dec 17); 12:e65646

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The COSMOS Registry of CytoSorb Hemoadsorption Therapy in Critically Ill Patients: Protocol for an International, Prospective Registry

Fabio Silvio Taccone, Frank Martin Brunkhorst, Gabriella Bottari, Jorge Hidalgo, Andreas Kribben, Jean-Louis Teboul, Dana Tomescu, Teresa Klaus, Joerg Scheier, Efthymios Deliargyris, Ricard Ferrer

JMIR Res Protoc 2024 (Nov 05); 13:e55880

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Effects of Injury Registry Data on Policy Making, Hospitalizations, and Mortality: Protocol for a Systematic Review and Meta-Analysis

Ana Cláudia Medeiros-de-Souza, Luana Emanuelly Sinhori Lopes, Bruno Zocca de Oliveira, Edna Terezinha Rother, Lucas Reis Correia

JMIR Res Protoc 2024 (Oct 30); 13:e55029

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Using Existing Clinical Data to Measure Older Adult Inpatients’ Frailty at Admission and Discharge: Hospital Patient Register Study

Boris Wernli, Henk Verloo, Armin von Gunten, Filipa Pereira

JMIR Aging 2024 (Oct 28); 7:e54839

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Bridging Data Models in Health Care With a Novel Intermediate Query Format for Feasibility Queries: Mixed Methods Study

Lorenz Rosenau, Julian Gruendner, Alexander Kiel, Thomas Köhler, Bastian Schaffer, Raphael W Majeed

JMIR Med Inform 2024 (Oct 14); 12:e58541

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Health Care Worker Usage of Large-Scale Health Information Exchanges in Japan: User-Level Audit Log Analysis Study

Jun Suzumoto, Yukiko Mori, Tomohiro Kuroda

JMIR Med Inform 2024 (Oct 09); 12:e56263

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Outcomes of Patients With Early and Locally Advanced Lung Cancer: Protocol for the Italian Lung Cancer Observational Study (LUCENT)

Luca Bertolaccini, Oriana Ciani, Marco Lucchi, Francesco Zaraca, Alessandro Bertani, Roberto Crisci, Lorenzo Spaggiari, LUCENT Study Group

JMIR Res Protoc 2024 (Oct 08); 13:e57183

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Unlocking the Potential of Secondary Data for Public Health Research: Retrospective Study With a Novel Clinical Platform

Christopher Gundler, Karl Gottfried, Alexander Johannes Wiederhold, Maximilian Ataian, Marcus Wurlitzer, Jan Erik Gewehr, Frank Ückert

Interact J Med Res 2024 (Oct 01); 13:e51563

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Toward Better Semantic Interoperability of Data Element Repositories in Medicine: Analysis Study

Zhengyong Hu, Anran Wang, Yifan Duan, Jiayin Zhou, Wanfei Hu, Sizhu Wu

JMIR Med Inform 2024 (Sep 30); 12:e60293

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Harnessing Generalizable Real-World Ophthalmic Big Data: Descriptive Analysis of the Bodhya Eye Consortium Model for Collaborative Research

Ishaana Sood, Shalinder Sabherwal, Umang Mathur, Elesh Jain, Madhu Bhadauria, Deepshikha Agrawal, Ashi Khurana, Vikas Mittal, Avinash Mahindrakar, Vishal Govindahari, Sucheta Kulkarni, Ken K Nischal

Online J Public Health Inform 2024 (Sep 30); 16:e53370

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Development of a Cohort Analytics Tool for Monitoring Progression Patterns in Cardiovascular Diseases: Advanced Stochastic Modeling Approach

Arindam Brahma, Samir Chatterjee, Kala Seal, Ben Fitzpatrick, Youyou Tao

JMIR Med Inform 2024 (Sep 24); 12:e59392

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Automated System to Capture Patient Symptoms From Multitype Japanese Clinical Texts: Retrospective Study

Tomohiro Nishiyama, Ayane Yamaguchi, Peitao Han, Lis Weiji Kanashiro Pereira, Yuka Otsuki, Gabriel Herman Bernardim Andrade, Noriko Kudo, Shuntaro Yada, Shoko Wakamiya, Eiji Aramaki, Masahiro Takada, Masakazu Toi

JMIR Med Inform 2024 (Sep 24); 12:e58977

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State-of-the-Art Fast Healthcare Interoperability Resources (FHIR)–Based Data Model and Structure Implementations: Systematic Scoping Review

Parinaz Tabari, Gennaro Costagliola, Mattia De Rosa, Martin Boeker

JMIR Med Inform 2024 (Sep 24); 12:e58445

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Emerging Indications for Hyperbaric Oxygen Treatment: Registry Cohort Study

Hideaki L Tanaka, Judy R Rees, Ziyin Zhang, Judy A Ptak, Pamela M Hannigan, Elaine M Silverman, Janet L Peacock, Jay C Buckey, Multicenter Registry for Hyperbaric Oxygen Treatment Consortium

Interact J Med Res 2024 (Aug 20); 13:e53821

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Exploring Cancer Incidence Trends by Age and Sex Among 14.14 Million Individuals in China From 2007 to 2021: Population-Based Study

Yingchao Yuan, Chang Liu, Moning Guo, Zhong Xin, Guanjie Chen, Yue Yang, Jianpeng Zheng, Bai Zang, Jinkui Yang

JMIR Public Health Surveill 2024 (Aug 07); 10:e55657

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Integrating Clinical Data and Medical Imaging in Lung Cancer: Feasibility Study Using the Observational Medical Outcomes Partnership Common Data Model Extension

Hyerim Ji, Seok Kim, Leonard Sunwoo, Sowon Jang, Ho-Young Lee, Sooyoung Yoo

JMIR Med Inform 2024 (Jul 12); 12:e59187

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User Preferences and Needs for Health Data Collection Using Research Electronic Data Capture: Survey Study

Hiral Soni, Julia Ivanova, Hattie Wilczewski, Triton Ong, J Nalubega Ross, Alexandra Bailey, Mollie Cummins, Janelle Barrera, Brian Bunnell, Brandon Welch

JMIR Med Inform 2024 (Jun 25); 12:e49785

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