Research Infrastructures and Registries

Unlocking the Potential of Secondary Data for Public Health Research: Retrospective Study With a Novel Clinical Platform

Christopher Gundler, Karl Gottfried, Alexander Johannes Wiederhold, Maximilian Ataian, Marcus Wurlitzer, Jan Erik Gewehr, Frank Ückert

Interact J Med Res 2024 (Oct 01); 13:e51563

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Toward Better Semantic Interoperability of Data Element Repositories in Medicine: Analysis Study

Zhengyong Hu, Anran Wang, Yifan Duan, Jiayin Zhou, Wanfei Hu, Sizhu Wu

JMIR Med Inform 2024 (Sep 30); 12:e60293

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Harnessing Generalizable Real-World Ophthalmic Big Data: Descriptive Analysis of the Bodhya Eye Consortium Model for Collaborative Research

Ishaana Sood, Shalinder Sabherwal, Umang Mathur, Elesh Jain, Madhu Bhadauria, Deepshikha Agrawal, Ashi Khurana, Vikas Mittal, Avinash Mahindrakar, Vishal Govindahari, Sucheta Kulkarni, Ken K Nischal

Online J Public Health Inform 2024 (Sep 30); 16:e53370

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Development of a Cohort Analytics Tool for Monitoring Progression Patterns in Cardiovascular Diseases: Advanced Stochastic Modeling Approach

Arindam Brahma, Samir Chatterjee, Kala Seal, Ben Fitzpatrick, Youyou Tao

JMIR Med Inform 2024 (Sep 24); 12:e59392

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Automated System to Capture Patient Symptoms From Multitype Japanese Clinical Texts: Retrospective Study

Tomohiro Nishiyama, Ayane Yamaguchi, Peitao Han, Lis Weiji Kanashiro Pereira, Yuka Otsuki, Gabriel Herman Bernardim Andrade, Noriko Kudo, Shuntaro Yada, Shoko Wakamiya, Eiji Aramaki, Masahiro Takada, Masakazu Toi

JMIR Med Inform 2024 (Sep 24); 12:e58977

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State-of-the-Art Fast Healthcare Interoperability Resources (FHIR)–Based Data Model and Structure Implementations: Systematic Scoping Review

Parinaz Tabari, Gennaro Costagliola, Mattia De Rosa, Martin Boeker

JMIR Med Inform 2024 (Sep 24); 12:e58445

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Emerging Indications for Hyperbaric Oxygen Treatment: Registry Cohort Study

Hideaki L Tanaka, Judy R Rees, Ziyin Zhang, Judy A Ptak, Pamela M Hannigan, Elaine M Silverman, Janet L Peacock, Jay C Buckey, Multicenter Registry for Hyperbaric Oxygen Treatment Consortium

Interact J Med Res 2024 (Aug 20); 13:e53821

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Exploring Cancer Incidence Trends by Age and Sex Among 14.14 Million Individuals in China From 2007 to 2021: Population-Based Study

Yingchao Yuan, Chang Liu, Moning Guo, Zhong Xin, Guanjie Chen, Yue Yang, Jianpeng Zheng, Bai Zang, Jinkui Yang

JMIR Public Health Surveill 2024 (Aug 07); 10:e55657

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Integrating Clinical Data and Medical Imaging in Lung Cancer: Feasibility Study Using the Observational Medical Outcomes Partnership Common Data Model Extension

Hyerim Ji, Seok Kim, Leonard Sunwoo, Sowon Jang, Ho-Young Lee, Sooyoung Yoo

JMIR Med Inform 2024 (Jul 12); 12:e59187

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User Preferences and Needs for Health Data Collection Using Research Electronic Data Capture: Survey Study

Hiral Soni, Julia Ivanova, Hattie Wilczewski, Triton Ong, J Nalubega Ross, Alexandra Bailey, Mollie Cummins, Janelle Barrera, Brian Bunnell, Brandon Welch

JMIR Med Inform 2024 (Jun 25); 12:e49785

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Comparison of Synthetic Data Generation Techniques for Control Group Survival Data in Oncology Clinical Trials: Simulation Study

Ippei Akiya, Takuma Ishihara, Keiichi Yamamoto

JMIR Med Inform 2024 (Jun 18); 12:e55118

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A Scalable Pseudonymization Tool for Rapid Deployment in Large Biomedical Research Networks: Development and Evaluation Study

Hammam Abu Attieh, Diogo Telmo Neves, Mariana Guedes, Massimo Mirandola, Chiara Dellacasa, Elisa Rossi, Fabian Prasser

JMIR Med Inform 2024 (Apr 23); 12:e49646

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Enhancing Energy Efficiency in Telehealth Internet of Things Systems Through Fog and Cloud Computing Integration: Simulation Study

Yunyong Guo, Sudhakar Ganti, Yi Wu

JMIR Biomed Eng 2024 (Mar 06); 9:e50175

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The Journey of Data Within a Global Data Sharing Initiative: A Federated 3-Layer Data Analysis Pipeline to Scale Up Multiple Sclerosis Research

Ashkan Pirmani, Edward De Brouwer, Lotte Geys, Tina Parciak, Yves Moreau, Liesbet M Peeters

JMIR Med Inform 2023 (Nov 09); 11:e48030

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Establishment of a Public Mental Health Database for Research Purposes in the Ferrara Province: Development and Preliminary Evaluation Study

Maria Ferrara, Elisabetta Gentili, Martino Belvederi Murri, Riccardo Zese, Marco Alberti, Giorgia Franchini, Ilaria Domenicano, Federica Folesani, Cristina Sorio, Lorenzo Benini, Paola Carozza, Julian Little, Luigi Grassi

JMIR Med Inform 2023 (Aug 09); 11:e45523

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Using a Design Thinking Approach to Develop a Social Media–Based Parenting Program for Parents of Children With Attention-Deficit/Hyperactivity Disorder: Mixed Methods Study

Umaporn Yam-Ubon, Therdpong Thongseiratch

JMIR Pediatr Parent 2023 (Jul 28); 6:e48201

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Trusted Data Spaces as a Viable and Sustainable Solution for Networks of Population-Based Patient Registries

Nicholas Nicholson, Sandra Caldeira, Artur Furtado, Ciaran Nicholl

JMIR Public Health Surveill 2023 (Jan 13); 9:e34123

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A Privacy-Preserving Distributed Medical Data Integration Security System for Accuracy Assessment of Cancer Screening: Development Study of Novel Data Integration System

Atsuko Miyaji, Kaname Watanabe, Yuuki Takano, Kazuhisa Nakasho, Sho Nakamura, Yuntao Wang, Hiroto Narimatsu

JMIR Med Inform 2022 (Dec 30); 10(12):e38922

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Linking Biomedical Data Warehouse Records With the National Mortality Database in France: Large-scale Matching Algorithm

Vianney Guardiolle, Adrien Bazoge, Emmanuel Morin, Béatrice Daille, Delphine Toublant, Guillaume Bouzillé, Youenn Merel, Morgane Pierre-Jean, Alexandre Filiot, Marc Cuggia, Matthieu Wargny, Antoine Lamer, Pierre-Antoine Gourraud

JMIR Med Inform 2022 (Nov 01); 10(11):e36711

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Using Electronic Health Records for the Learning Health System: Creation of a Diabetes Research Registry

Brian J Wells, Stephen M Downs, Brian Ostasiewski

JMIR Med Inform 2022 (Sep 23); 10(9):e39746

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