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This paper is in the following e-collection/theme issue:

Research Infrastructures and Registries (108) Organizational Issues (278) Big Data (451) Electronic Health Records (1819) Health Information Exchange (244) Methods and Instruments in Medical Informatics (446) eHealth Infrastructures (513) Ontologies, Classifications, and Coding (483) Information Models (109) Secondary Use of Clinical Data for Research and Surveillance (677) New Technologies (172) Standards and Interoperability (238)

Published on in Vol 13 (2025)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/63906, first published .
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Toward a Domain-Overarching Metadata Schema for Making Health Research Studies FAIR (Findable, Accessible, Interoperable, and Reusable): Development of the NFDI4Health Metadata Schema

Toward a Domain-Overarching Metadata Schema for Making Health Research Studies FAIR (Findable, Accessible, Interoperable, and Reusable): Development of the NFDI4Health Metadata Schema

Authors of this article:

Haitham Abaza1 Author Orcid Image ;   Aliaksandra Shutsko2 Author Orcid Image ;   Sophie A I Klopfenstein3 Author Orcid Image ;   Carina N Vorisek3 Author Orcid Image ;   Carsten Oliver Schmidt4 Author Orcid Image ;   Claudia Brünings-Kuppe5 Author Orcid Image ;   Vera Clemens2 Author Orcid Image ;   Johannes Darms2 Author Orcid Image ;   Sabine Hanß6 Author Orcid Image ;   Timm Intemann5 Author Orcid Image ;   Franziska Jannasch7 Author Orcid Image ;   Elisa Kasbohm4 Author Orcid Image ;   Birte Lindstädt2 Author Orcid Image ;   Matthias Löbe8 Author Orcid Image ;   Katharina Nimptsch9 Author Orcid Image ;   Ute Nöthlings10 Author Orcid Image ;   Marisabel Gonzalez Ocanto2 Author Orcid Image ;   Tracy Bonsu Osei9 Author Orcid Image ;   Ines Perrar10 Author Orcid Image ;   Manuela Peters5 Author Orcid Image ;   Tobias Pischon9 Author Orcid Image ;   Ulrich Sax6 Author Orcid Image ;   Matthias B Schulze7 Author Orcid Image ;   Florian Schwarz7 Author Orcid Image ;   Carolina Schwedhelm9 Author Orcid Image ;   Sylvia Thun3 Author Orcid Image ;   Dagmar Waltemath4 Author Orcid Image ;   Atinkut A Zeleke4 Author Orcid Image ;   Wolfgang Müller1 Author Orcid Image ;   Martin Golebiewski1 Author Orcid Image
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  1. Kim M, Kim N, Kim H, Song T. Design of an Extended DCAT-Based Metadata Schema and Data Catalog for Autonomous Vehicle Accident Investigation. Sustainability 2025;17(24):11237 View
  2. Mauer K, Iyappan A, Parker S, Sürün B, Tremper G, Menges P, Kuchenbecker L, Kirli K, Schultze J, Nahnsen S, Ulas T. Semantic alignment of the German Human Genome-Phenome Archive metadata model in Europe’s genomics field. Scientific Data 2026;13(1) View
  3. Witte H, Unni D, Krauss P, Touré V, Armida J, Österle S. The Swiss Personalized Health Network Metadata Catalog: Platform for Health Data Discovery and Exploration Based on Findable, Accessible, Interoperable, and Reusable Principles. JMIR Medical Informatics 2026;14:e90146 View
  4. Anghel C, Anghel A, Craciun M, Moldovanu S, Cocu A, Vulpe D, Maier C, Potop V, Dragosloveanu C, Andrei C, Dragosloveanu S, Scheau C. From Medical Records to AI-Ready Datasets: A Practical Guide for Clinical Researchers. Journal of Clinical Medicine 2026;15(16):6297 View
  5. Grundmann F, Arjune S, Alkarkoukly S, Bartram M, Beck B, Benzing T, Boehm V, Bohl K, Burst V, Busch M, Cakiroglu F, Cukoski S, Gerke P, Große-Hokamp N, Halbritter J, Matrisch L, Persigehl T, Petzold F, Schmidt J, Schmitt R, Todorova P, Wanner C, Antczak P, Müller R, Alscher D, Baeßler B, Aydogan-Balaban H, Beyan O, Beyer A, Böhme C, Burkert K, Caldeira L, Cybulla M, Degenhardt J, Engelhard M, Erger F, Ester L, ten Freyhaus H, Heindel J, Hendrix C, Jaiswal A, Karner L, Ketteler M, Kiefer K, Koehler F, Kühn A, Latus J, Lettenmeier K, Lindemann C, Maintz D, Meyer F, Maushake S, Oehm S, Peschel K, Pfister R, Pickert L, Pley A, Rank J, Reichel F, Rinneburger M, Schanz M, Scherrer P, Schömig T, Schricker S, Siedek F, Stremel O, Strubl S, Suarez V, Vehreschild J, Wenzel A, Wöstmann F, Zöll A. MEDA-PKD: a dynamic, real-time analytics platform for precision care in autosomal dominant polycystic kidney disease. npj Digital Medicine 2026;9(1) View

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