Published on in Vol 13 (2025)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/63906, first published .
Toward a Domain-Overarching Metadata Schema for Making Health Research Studies FAIR (Findable, Accessible, Interoperable, and Reusable): Development of the NFDI4Health Metadata Schema

Toward a Domain-Overarching Metadata Schema for Making Health Research Studies FAIR (Findable, Accessible, Interoperable, and Reusable): Development of the NFDI4Health Metadata Schema

Toward a Domain-Overarching Metadata Schema for Making Health Research Studies FAIR (Findable, Accessible, Interoperable, and Reusable): Development of the NFDI4Health Metadata Schema

Haitham Abaza   1 , PhD ;   Aliaksandra Shutsko   2 , MLIS ;   Sophie A I Klopfenstein   3 , MD ;   Carina N Vorisek   3 , MD, PhD ;   Carsten Oliver Schmidt   4 , Prof Dr ;   Claudia Brünings-Kuppe   5 , Dipl Dok (FH) ;   Vera Clemens   2 , MSc ;   Johannes Darms   2 , MSc ;   Sabine Hanß   6 , Dipl Inf ;   Timm Intemann   5 , Dr rer nat ;   Franziska Jannasch   7 , PhD ;   Elisa Kasbohm   4 , MSc ;   Birte Lindstädt   2 , MLIS ;   Matthias Löbe   8 , Dipl Inf ;   Katharina Nimptsch   9 , DrScHum ;   Ute Nöthlings   10 , Prof Dr ;   Marisabel Gonzalez Ocanto   2 , MA ;   Tracy Bonsu Osei   9 , MPhil ;   Ines Perrar   10 , Dr troph ;   Manuela Peters   5 , PhD ;   Tobias Pischon   9 , Prof Dr ;   Ulrich Sax   6 , Prof Dr ;   Matthias B Schulze   7 , DrPH ;   Florian Schwarz   7 , PhD ;   Carolina Schwedhelm   9 , DrPH ;   Sylvia Thun   3 , Prof Dr ;   Dagmar Waltemath   4 , Prof Dr ;   Atinkut A Zeleke   4 , PhD ;   Wolfgang Müller   1 , Priv Doz Dr ;   Martin Golebiewski   1 , MSc

1 Scientific Databases and Visualization, Heidelberg Institute for Theoretical Studies (HITS), Heidelberg, Germany

2 Information Centre for Life Sciences, German National Library of Medicine (ZB MED), Cologne, Germany

3 Core Facility Digital Medicine and Interoperability, Universitätsmedizin Berlin, Berlin Institute of Health at Charité, Berlin, Germany

4 Institute for Community Medicine, University Medicine Greifswald, Greifswald, Germany

5 Department of Biometry and Data Management, Leibniz Institute for Prevention Research and Epidemiology - BIPS, Bremen, Germany

6 Department of Medical Informatics, University Medical Center Göttingen, Georg-August-University, Göttingen, Germany

7 Department of Molecular Epidemiology, German Institute of Human Nutrition Potsdam-Rehbruecke, Nuthetal, Germany

8 Institute for Medical Informatics, Statistics and Epidemiology, University Leipzig, Leipzig, Germany

9 Molecular Epidemiology Research Group, Max-Delbrück-Center for Molecular Medicine in the Helmholtz Association (MDC), Berlin, Germany

10 Department of Nutrition and Food Science, University of Bonn, Bonn, Germany

Corresponding Author:

  • Haitham Abaza, PhD
  • Scientific Databases and Visualization
  • Heidelberg Institute for Theoretical Studies (HITS)
  • Schloss-Wolfsbrunnenweg 35
  • Heidelberg 69118
  • Germany
  • Phone: 49 6221533231
  • Email: haithamabaza@gmail.com