Secondary Use of Clinical Data for Research and Surveillance

Articles published in this theme: 529 (scroll down to load remaining articles)

2026

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Toward a Better Paradigm for Head and Neck Cancer Treatment Applying AI (HNC-TACTIC): Protocol for an International Cohort Study of Electronic Health Records

Hisham Mehanna, Jacobo Rogado, Alejandro Castro Calvo, Víctor González, Francina Aguilar, Dorian Culié, Álvaro Sanabria, Sergio Fabian Zuñiga Pavia, Marta Guix, Sujith Baliga, Roland Giger, Sara-Lynn Hool, Olgun Elicin, Matthaeus Stoehr, Ahmad K Abou-Foul, Melvin L K Chua, Pablo Parente, Andreas Dietz, John R de Almeida, Christian Simon, F Christopher Holsinger, Robert Ferris, Raul Giglio, Kate Hutcheson, David Casadevall, Miren Taberna

JMIR Res Protoc 2026 (Jul 13); 15:e83598

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The Orphanet Nomenclature and Classification of Rare Diseases for Improved Patient Recognition and Data Interoperability: Qualitative and Quantitative Analysis

Caterina Lucano, David Lagorce, Annie Olry, Houda Ali, Valérie Lanneau, Mickael De Carvalho, Aysegul Dilsizoglu Senol, Marta Fructuoso, Emilie Gaillard, Marie-Cécile Gaillard, Seed Mihic, Mariana Tannoury, Florence Sauvage, Charlotte Rodwell, Sylvie Maiella, Marc Hanauer, Ana Rath

JMIR Med Inform 2026 (Jul 08); 14:e84553

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AI-Assisted Clinical Data Abstraction From Electronic Health Records: Retrospective Concordance Study

Camille Sarah Schwartz, Michael John Anderson, Kelsey Nicole Moakler, Bradley Adam Newby, David Alan Davenport, Matthew Wilson Schwartz

JMIR Form Res 2026 (Jul 07); 10:e96755

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Determinants of Acute Kidney Injury After Endoscopic Retrograde Cholangiopancreatography in Patients With Liver Cirrhosis: Retrospective Observational Study

Chieh Wei Chang

JMIR Med Inform 2026 (Jul 06); 14:e87551

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Machine Learning–Based Predictive Model for Functional Independence in Spinal Cord Injury: Protocol for a Predictive Rule Development and Validation Study

Alberto Isaac Perez-Sanpablo, Marlene Alejandra Rodriguez-Barragan, Alicia Meneses-Peñaloza, Jimena Quinzaños-Fresnedo, Aida Barrera-Ortiz, Fabiola Monserrat Palomino-Ramos, Oscar Prado-Escobar, Marcela D Rodríguez, Irvin Hussein Lopez-Nava, Jose Ambrosio-Bastian

JMIR Res Protoc 2026 (Jul 03); 15:e95236

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Large Language Model Versus Multidisciplinary Team: Feasibility Study of Pancreatic Cancer Management Recommendations

Zhuoran Liu, Xin Zhao, Tianyang Mao, Heng Zhou, Kangyi Jiang

J Med Internet Res 2026 (Jun 30); 28:e95411

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Predicting Overall Survival in Patients With Multiple Primary Lung Cancer: Nomogram Development and Validation Study

Wenzhi Luo, Kengliang Rao, Hongjia Chen, Cailian Hu, Shengming Liu, Jing Wang, Dongdong Zhang, Li Chen

JMIR Cancer 2026 (Jun 26); 12:e87275

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Patient Perceptions and Acceptance of Blockchain-Based Health Data Sharing in Oncology: Cross-Sectional Survey

Matheus Villa Moraes, Marcos Almeida Matos

JMIR Form Res 2026 (Jun 25); 10:e89278

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Blockchain-Based Dynamic and Revocable Consent for Secondary Health Data Use: Systematic Review

Sudip Phuyal, Manila Bhandari, Rabindra Bista, João Carlos Ferreira

JMIR Med Inform 2026 (Jun 22); 14:e88536

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Pre-Amyloidosis Red-Flag Clinical Diagnoses in Light Chain (AL) Versus Age-Related Transthyretin (ATTRwt) Amyloidosis: Electronic Health Record–Based Descriptive Study

Noel Estrada-Merly, Liliana E Pezzin, Rodney Sparapani, Anita D'Souza

JMIR Med Inform 2026 (Jun 22); 14:e85803

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Multimodal Data Approaches for Examining the 2024-2025 Highly Pathogenic Avian Influenza Outbreak in the United States: Descriptive Study

Juliana Sopko, Aimee R Han, Jacqueline Powers, Jacquelin A Sauer, Mansi Avunoori, Stanislaw Zakrzewski, Allison Krugman, Abhishek Dasgupta, Kara Sewalk, Autumn Gertz, Benjamin Rader, James Sheldon, Brennan Klein, Jessica Malaty Rivera, Moritz U G Kraemer, Samuel V Scarpino, John S Brownstein

JMIR Public Health Surveill 2026 (Jun 22); 12:e86209

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Measuring the Quality of Datasets: Development of the IDEFIM Indicator Set for Empirical Health Research

Sonja Harkener, Oliver J Bott, Christian Draeger, Tobias Hartz, Ekkehart Jenetzky, Matthias Löbe, Stefanie March, Chris Schubert, Jürgen Stausberg

J Med Internet Res 2026 (Jun 17); 28:e90482

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Dynamic Consent for Secondary Use of Health Data: Challenges and Opportunities Under European Law

Sudip Phuyal, Manila Bhandari, Ricardo Correia Bezerra, Rabindra Bista, João Carlos Ferreira

JMIR Med Inform 2026 (Jun 16); 14:e93348

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Mining and Mapping 25 Years of Medication Use in Child and Adolescent Mental Health Services: Contact-Level Descriptive Analysis of Electronic Health Records

Dipendra Pant, Carolyn Clausen, Bennett L Leventhal, Thomas Brox Røst, Roman Koposov, Odd Sverre Westbye, Jostein Arntzen, Norbert Skokauskas, Øystein Nytrø

JMIR Med Inform 2026 (Jun 16); 14:e86066

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Predicting Laboratory Test Ordering in Emergency Departments Using Integrated Structured and Unstructured Electronic Health Records: Machine Learning Study

Xingyu Zhang, Haipeng Ling, Xin Zhang, Anao Zhang

JMIR Med Inform 2026 (Jun 15); 14:e85255

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Addressing Data Quality Challenges in Lung Cancer Data Within the Observational Medical Outcomes Partnership Common Data Model: Observational Study

Jens Declerck, Mieke Deschepper, Kirsten Colpaert, Dipak Kalra, Pascal Coorevits

J Med Internet Res 2026 (Jun 08); 28:e90246

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High Patient Willingness to Grant Broad Consent for Real-World Data Use in Rheumatology—Implications for Real-World Data Platform Governance: Cross-Sectional Study

Jutta G Richter, Antonia Becker, Tim Filla, Hasan Acar, Waldemar Ockert, Dominykas Kriauciunas, Edith Aggarwal, Markus Schröder, Ralf Hansen, Jörg HW Distler, Matthias Schneider

J Med Internet Res 2026 (Jun 08); 28:e80347

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Health Care Use and Recurrence Rate in Hemolytic Disease of the Fetus and Newborn: Retrospective Cohort Study

Nehaa Khadka, Michael J Fassett, Carol Mao, Fagen Xie, Vicki Y Chiu, Jiaxiao M Shi, Theresa M Im, Sunhea Kim, Daniella Park, Darios Getahun

JMIR Pediatr Parent 2026 (Jun 05); 9:e88772

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Interpretable Machine Learning Framework for Predicting Major Adverse Cardiovascular Events in Rheumatoid Arthritis Using Electronic Health Records: Multicenter Cohort Study

Wei-Chen Chiang, Guan-Ling Lin, Yu-Chen Liu, Chih-Wei Huang, Phung Anh Nguyen, Yu-Sheng Chang, Jason C Hsu, Der-Ming Liou, Hsuan-Chia Yang

JMIR Form Res 2026 (Jun 05); 10:e91790

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Physicians’ Perceptions and Demand Regarding Clinical and Secondary Use of Patient-Generated Health Data: Cross-Sectional Survey

Ye-Eun Park, Sang Sook Beck, Yura Lee

J Med Internet Res 2026 (Jun 04); 28:e86368

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