Secondary Use of Clinical Data for Research and Surveillance

What Every Reader Should Know About Studies Using Electronic Health Record Data but May Be Afraid to Ask

Isaac S Kohane, Bruce J Aronow, Paul Avillach, Brett K Beaulieu-Jones, Riccardo Bellazzi, Robert L Bradford, Gabriel A Brat, Mario Cannataro, James J Cimino, Noelia García-Barrio, Nils Gehlenborg, Marzyeh Ghassemi, Alba Gutiérrez-Sacristán, David A Hanauer, John H Holmes, Chuan Hong, Jeffrey G Klann, Ne Hooi Will Loh, Yuan Luo, Kenneth D Mandl, Mohamad Daniar, Jason H Moore, Shawn N Murphy, Antoine Neuraz, Kee Yuan Ngiam, Gilbert S Omenn, Nathan Palmer, Lav P Patel, Miguel Pedrera-Jiménez, Piotr Sliz, Andrew M South, Amelia Li Min Tan, Deanne M Taylor, Bradley W Taylor, Carlo Torti, Andrew K Vallejos, Kavishwar B Wagholikar, The Consortium For Clinical Characterization Of COVID-19 By EHR (4CE), Griffin M Weber, Tianxi Cai

J Med Internet Res 2021 (Mar 02); 23(3):e22219

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Opening a “Can of Worms” to Explore the Public's Hopes and Fears About Health Care Data Sharing: Qualitative Study

Olivia Lounsbury, Lily Roberts, Jonathan R Goodman, Philippa Batey, Lenny Naar, Kelsey M Flott, Anna Lawrence-Jones, Saira Ghafur, Ara Darzi, Ana Luisa Neves

J Med Internet Res 2021 (Feb 22); 23(2):e22744

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Federated Learning of Electronic Health Records to Improve Mortality Prediction in Hospitalized Patients With COVID-19: Machine Learning Approach

Akhil Vaid, Suraj K Jaladanki, Jie Xu, Shelly Teng, Arvind Kumar, Samuel Lee, Sulaiman Somani, Ishan Paranjpe, Jessica K De Freitas, Tingyi Wanyan, Kipp W Johnson, Mesude Bicak, Eyal Klang, Young Joon Kwon, Anthony Costa, Shan Zhao, Riccardo Miotto, Alexander W Charney, Erwin Böttinger, Zahi A Fayad, Girish N Nadkarni, Fei Wang, Benjamin S Glicksberg

JMIR Med Inform 2021 (Jan 27); 9(1):e24207

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Use of the Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT) for Processing Free Text in Health Care: Systematic Scoping Review

Christophe Gaudet-Blavignac, Vasiliki Foufi, Mina Bjelogrlic, Christian Lovis

J Med Internet Res 2021 (Jan 26); 23(1):e24594

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Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study

Cason Schmit, Kobi V Ajayi, Alva O Ferdinand, Theodoros Giannouchos, Gurudev Ilangovan, W Benjamin Nowell, Hye-Chung Kum

J Med Internet Res 2020 (Dec 15); 22(12):e20783

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Proposal and Assessment of a De-Identification Strategy to Enhance Anonymity of the Observational Medical Outcomes Partnership Common Data Model (OMOP-CDM) in a Public Cloud-Computing Environment: Anonymization of Medical Data Using Privacy Models

Seungho Jeon, Jeongeun Seo, Sukyoung Kim, Jeongmoon Lee, Jong-Ho Kim, Jang Wook Sohn, Jongsub Moon, Hyung Joon Joo

J Med Internet Res 2020 (Nov 26); 22(11):e19597

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Evaluating Identity Disclosure Risk in Fully Synthetic Health Data: Model Development and Validation

Khaled El Emam, Lucy Mosquera, Jason Bass

J Med Internet Res 2020 (Nov 16); 22(11):e23139

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Natural Language Processing for Surveillance of Cervical and Anal Cancer and Precancer: Algorithm Development and Split-Validation Study

Carlos R Oliveira, Patrick Niccolai, Anette Michelle Ortiz, Sangini S Sheth, Eugene D Shapiro, Linda M Niccolai, Cynthia A Brandt

JMIR Med Inform 2020 (Nov 03); 8(11):e20826

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Automated Cluster Detection of Health Care–Associated Infection Based on the Multisource Surveillance of Process Data in the Area Network: Retrospective Study of Algorithm Development and Validation

Yunzhou Fan, Yanyan Wu, Xiongjing Cao, Junning Zou, Ming Zhu, Di Dai, Lin Lu, Xiaoxv Yin, Lijuan Xiong

JMIR Med Inform 2020 (Oct 23); 8(10):e16901

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Application of Big Data Technology for COVID-19 Prevention and Control in China: Lessons and Recommendations

Jun Wu, Jian Wang, Stephen Nicholas, Elizabeth Maitland, Qiuyan Fan

J Med Internet Res 2020 (Oct 09); 22(10):e21980

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Construction of a Digestive System Tumor Knowledge Graph Based on Chinese Electronic Medical Records: Development and Usability Study

Xiaolei Xiu, Qing Qian, Sizhu Wu

JMIR Med Inform 2020 (Oct 07); 8(10):e18287

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Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

Raphael Scheible, Dennis Kadioglu, Stephan Ehl, Marco Blum, Martin Boeker, Michael Folz, Bodo Grimbacher, Jens Göbel, Christoph Klein, Alexandra Nieters, Stephan Rusch, Gerhard Kindle, Holger Storf

JMIR Med Inform 2020 (Oct 07); 8(10):e17420

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Clinical Predictive Models for COVID-19: Systematic Study

Patrick Schwab, August DuMont Schütte, Benedikt Dietz, Stefan Bauer

J Med Internet Res 2020 (Oct 06); 22(10):e21439

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Automating the Generation of Antimicrobial Resistance Surveillance Reports: Proof-of-Concept Study Involving Seven Hospitals in Seven Countries

Cherry Lim, Thyl Miliya, Vilada Chansamouth, Myint Thazin Aung, Abhilasha Karkey, Prapit Teparrukkul, Batra Rahul, Nguyen Phu Huong Lan, John Stelling, Paul Turner, Elizabeth Ashley, H Rogier van Doorn, Htet Naing Lin, Clare Ling, Soawapak Hinjoy, Sopon Iamsirithaworn, Susanna Dunachie, Tri Wangrangsimakul, Viriya Hantrakun, William Schilling, Lam Minh Yen, Le Van Tan, Htay Htay Hlaing, Mayfong Mayxay, Manivanh Vongsouvath, Buddha Basnyat, Jonathan Edgeworth, Sharon J Peacock, Guy Thwaites, Nicholas PJ Day, Ben S Cooper, Direk Limmathurotsakul

J Med Internet Res 2020 (Oct 02); 22(10):e19762

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Secure Record Linkage of Large Health Data Sets: Evaluation of a Hybrid Cloud Model

Adrian Paul Brown, Sean M Randall

JMIR Med Inform 2020 (Sep 23); 8(9):e18920

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What You Need to Know Before Implementing a Clinical Research Data Warehouse: Comparative Review of Integrated Data Repositories in Health Care Institutions

Kristina K Gagalova, M Angelica Leon Elizalde, Elodie Portales-Casamar, Matthias Görges

JMIR Form Res 2020 (Aug 27); 4(8):e17687

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Model-Based Algorithms for Detecting Peripheral Artery Disease Using Administrative Data From an Electronic Health Record Data System: Algorithm Development Study

Elizabeth Hope Weissler, Steven J Lippmann, Michelle M Smerek, Rachael A Ward, Aman Kansal, Adam Brock, Robert C Sullivan, Chandler Long, Manesh R Patel, Melissa A Greiner, N Chantelle Hardy, Lesley H Curtis, W Schuyler Jones

JMIR Med Inform 2020 (Aug 19); 8(8):e18542

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Incorporating Breast Cancer Recurrence Events Into Population-Based Cancer Registries Using Medical Claims: Cohort Study

Teresa A'mar, J David Beatty, Catherine Fedorenko, Daniel Markowitz, Thomas Corey, Jane Lange, Stephen M Schwartz, Bin Huang, Jessica Chubak, Ruth Etzioni

JMIR Cancer 2020 (Aug 17); 6(2):e18143

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Approaches Based on Artificial Intelligence and the Internet of Intelligent Things to Prevent the Spread of COVID-19: Scoping Review

Aya Sedky Adly, Afnan Sedky Adly, Mahmoud Sedky Adly

J Med Internet Res 2020 (Aug 10); 22(8):e19104

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Applying Machine Learning Models with An Ensemble Approach for Accurate Real-Time Influenza Forecasting in Taiwan: Development and Validation Study

Hao-Yuan Cheng, Yu-Chun Wu, Min-Hau Lin, Yu-Lun Liu, Yue-Yang Tsai, Jo-Hua Wu, Ke-Han Pan, Chih-Jung Ke, Chiu-Mei Chen, Ding-Ping Liu, I-Feng Lin, Jen-Hsiang Chuang

J Med Internet Res 2020 (Aug 05); 22(8):e15394

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