Secondary Use of Clinical Data for Research and Surveillance

Articles published in 2026 in this theme: 45 (scroll down to load remaining articles)

2026

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Blockchain-Based Dynamic and Revocable Consent for Secondary Health Data Use: Systematic Review

Sudip Phuyal, Manila Bhandari, Rabindra Bista, João Carlos Ferreira

JMIR Med Inform 2026 (Jun 22); 14:e88536

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Pre-Amyloidosis Red-Flag Clinical Diagnoses in Light Chain (AL) Versus Age-Related Transthyretin (ATTRwt) Amyloidosis: Electronic Health Record–Based Descriptive Study

Noel Estrada-Merly, Liliana E Pezzin, Rodney Sparapani, Anita D'Souza

JMIR Med Inform 2026 (Jun 22); 14:e85803

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Multimodal Data Approaches for Examining the 2024-2025 Highly Pathogenic Avian Influenza Outbreak in the United States: Descriptive Study

Juliana Sopko, Aimee R Han, Jacqueline Powers, Jacquelin A Sauer, Mansi Avunoori, Stanislaw Zakrzewski, Allison Krugman, Abhishek Dasgupta, Kara Sewalk, Autumn Gertz, Benjamin Rader, James Sheldon, Brennan Klein, Jessica Malaty Rivera, Moritz U G Kraemer, Samuel V Scarpino, John S Brownstein

JMIR Public Health Surveill 2026 (Jun 22); 12:e86209

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Measuring the Quality of Datasets: Development of the IDEFIM Indicator Set for Empirical Health Research

Sonja Harkener, Oliver J Bott, Christian Draeger, Tobias Hartz, Ekkehart Jenetzky, Matthias Löbe, Stefanie March, Chris Schubert, Jürgen Stausberg

J Med Internet Res 2026 (Jun 17); 28:e90482

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Dynamic Consent for Secondary Use of Health Data: Challenges and Opportunities Under European Law

Sudip Phuyal, Manila Bhandari, Ricardo Correia Bezerra, Rabindra Bista, João Carlos Ferreira

JMIR Med Inform 2026 (Jun 16); 14:e93348

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Mining and Mapping 25 Years of Medication Use in Child and Adolescent Mental Health Services: Contact-Level Descriptive Analysis of Electronic Health Records

Dipendra Pant, Carolyn Clausen, Bennett L Leventhal, Thomas Brox Røst, Roman Koposov, Odd Sverre Westbye, Jostein Arntzen, Norbert Skokauskas, Øystein Nytrø

JMIR Med Inform 2026 (Jun 16); 14:e86066

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Predicting Laboratory Test Ordering in Emergency Departments Using Integrated Structured and Unstructured Electronic Health Records: Machine Learning Study

Xingyu Zhang, Haipeng Ling, Xin Zhang, Anao Zhang

JMIR Med Inform 2026 (Jun 15); 14:e85255

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Addressing Data Quality Challenges in Lung Cancer Data Within the Observational Medical Outcomes Partnership Common Data Model: Observational Study

Jens Declerck, Mieke Deschepper, Kirsten Colpaert, Dipak Kalra, Pascal Coorevits

J Med Internet Res 2026 (Jun 08); 28:e90246

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High Patient Willingness to Grant Broad Consent for Real-World Data Use in Rheumatology—Implications for Real-World Data Platform Governance: Cross-Sectional Study

Jutta G Richter, Antonia Becker, Tim Filla, Hasan Acar, Waldemar Ockert, Dominykas Kriauciunas, Edith Aggarwal, Markus Schröder, Ralf Hansen, Jörg HW Distler, Matthias Schneider

J Med Internet Res 2026 (Jun 08); 28:e80347

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Health Care Use and Recurrence Rate in Hemolytic Disease of the Fetus and Newborn: Retrospective Cohort Study

Nehaa Khadka, Michael J Fassett, Carol Mao, Fagen Xie, Vicki Y Chiu, Jiaxiao M Shi, Theresa M Im, Sunhea Kim, Daniella Park, Darios Getahun

JMIR Pediatr Parent 2026 (Jun 05); 9:e88772

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Interpretable Machine Learning Framework for Predicting Major Adverse Cardiovascular Events in Rheumatoid Arthritis Using Electronic Health Records: Multicenter Cohort Study

Wei-Chen Chiang, Guan-Ling Lin, Yu-Chen Liu, Chih-Wei Huang, Phung Anh Nguyen, Yu-Sheng Chang, Jason C Hsu, Der-Ming Liou, Hsuan-Chia Yang

JMIR Form Res 2026 (Jun 05); 10:e91790

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Physicians’ Perceptions and Demand Regarding Clinical and Secondary Use of Patient-Generated Health Data: Cross-Sectional Survey

Ye-Eun Park, Sang Sook Beck, Yura Lee

J Med Internet Res 2026 (Jun 04); 28:e86368

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Early Immunological Biomarkers for Personalized Treatment Selection in Severe COVID-19: Post Hoc Machine Learning Analysis of a Randomized Clinical Trial

Symeon Savvopoulos, Anastasia Papadopoulou, Georgios Karavalakis, Ioanna Sakellari, Grigorios Georgolopoulos, Christos Argyropoulos, Evangelia Yannaki, Haralampos Hatzikirou

JMIR Med Inform 2026 (Jun 04); 14:e78471

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Development and Interpretability Analysis of a Stacking Ensemble Model for Early Prediction of Nutritional Risk in Intensive Care Unit Patients: Retrospective Cohort Study

Xu Zhang, An Fang, Pei Lou, Kuanda Yao, Tianci Huang, Jiahui Hu

JMIR Med Inform 2026 (Jun 03); 14:e77872

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Smartphone Ownership Among Cardiology Inpatients Pre–COVID-19 and Post–COVID-19 Pandemic: Secondary Analysis of Randomized Controlled Trials

Sarah Badger, Praveen Indraratna, Jennifer Yu, James McVeigh, Joseph Magdy, Joan Li, Nigel Lovell, Sze-Yuan Ooi

JMIR Cardio 2026 (Jun 02); 10:e77141

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Pediatric Clinical Images Without Consent: A Governance Gap in the Long-Term Reuse of Health Data in Digital Health Ecosystems

Iwona Bujek

J Med Internet Res 2026 (Jun 01); 28:e94952

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Cardiovascular-Kidney-Metabolic Syndrome: Development of an ICD-10-CM Coding Framework

Minzhe Zhao, Junhao Zhang, Huiyun Wang, Chongjun Xu, Jiahui Li, Chenghua Li, Xuemei He, Xueying Zheng

JMIR Diabetes 2026 (Jun 01); 11:e91827

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A Practical Approach to Assessing the Completeness of Electronic Health Records for Medical Research: Data Quality Study

Minsik Lim, Suehyun Lee, Woongsang Sunwoo, Nayeong Son, Doyeon An

JMIR Med Inform 2026 (May 21); 14:e68935

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EPOCA Tele-Monitoring System for Older Adults at High Risk of Hospitalization: Budget Impact and Cost-Effectiveness Analysis

Henri Leleu, Damien Testa, Mireille Dutech, Etienne Minvielle, Elise Cabanes

J Med Internet Res 2026 (May 14); 28:e80302

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Examining Sensory Systems That Contribute to Falls in Parkinson Disease Using Computerized Dynamic Posturography: Secondary Analysis

Monica Rivera

JMIR Form Res 2026 (May 07); 10:e84659

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