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Research Infrastructures and Registries (62) Ontologies, Classifications, and Coding (243) Secondary Use of Clinical Data for Research and Surveillance (375) Policy (61)

Published on in Vol 10, No 5 (2022): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/32158, first published .
Domain-Specific Common Data Elements for Rare Disease Registration: Conceptual Approach of a European Joint Initiative Toward Semantic Interoperability in Rare Disease Research

Domain-Specific Common Data Elements for Rare Disease Registration: Conceptual Approach of a European Joint Initiative Toward Semantic Interoperability in Rare Disease Research

Domain-Specific Common Data Elements for Rare Disease Registration: Conceptual Approach of a European Joint Initiative Toward Semantic Interoperability in Rare Disease Research

Authors of this article:

Haitham Abaza1 Author Orcid Image ;   Dennis Kadioglu1 Author Orcid Image ;   Simona Martin2 Author Orcid Image ;   Andri Papadopoulou2 Author Orcid Image ;   Bruna dos Santos Vieira3, 4 Author Orcid Image ;   Franz Schaefer5 Author Orcid Image ;   Holger Storf1 Author Orcid Image
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