Preferences of the Public for Sharing Health Data: Discrete Choice Experiment

Jennifer Viberg Johansson   ¹ , PhD ;   Heidi Beate Bentzen   ² , LLM ;   Nisha Shah   ³ , MSc ;   Eik Haraldsdóttir   ⁴ , MSc ;   Guðbjörg Andrea Jónsdóttir   ⁴ , PhD ;   Jane Kaye   ^{3, 5} , PhD ;   Deborah Mascalzoni   ^{1, 6} , PhD ;   Jorien Veldwijk   ^{1, 7} , PhD

¹ Centre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Uppsala Universitet, Uppsala, Sweden

² Norwegian Research Center for Computers and Law, Faculty of Law, University of Oslo, Oslo, Norway

³ Centre for Health, Law, and Emerging Technologies, Faculty of Law, University of Oxford, Oxford, United Kingdom

⁴ Social Science Research Institute, University of Iceland, Reykjavik, Iceland

⁵ Centre for Health, Law and Emerging Technologies, Melbourne Law School, University of Melbourne, Melbourne, Australia

⁶ Institute for Biomedicine, Bolzano, Italy

⁷ Erasmus School of Health Policy and Management, Erasmus University, Rotterdam, Netherlands