This paper is in the following e-collection/theme issue:

Secondary Use of Clinical Data for Research and Surveillance (375) Big Data (245) Policy (61) Research Infrastructures and Registries (62) Ethics, Privacy, and Legal Issues (494) Participatory Medicine & E-Patients (787)

Published on in Vol 9, No 7 (2021): July

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/29614, first published .
Preferences of the Public for Sharing Health Data: Discrete Choice Experiment

Preferences of the Public for Sharing Health Data: Discrete Choice Experiment

Preferences of the Public for Sharing Health Data: Discrete Choice Experiment

Authors of this article:

Jennifer Viberg Johansson1 Author Orcid Image ;   Heidi Beate Bentzen2 Author Orcid Image ;   Nisha Shah3 Author Orcid Image ;   Eik Haraldsdóttir4 Author Orcid Image ;   Guðbjörg Andrea Jónsdóttir4 Author Orcid Image ;   Jane Kaye3, 5 Author Orcid Image ;   Deborah Mascalzoni1, 6 Author Orcid Image ;   Jorien Veldwijk1, 7 Author Orcid Image
Article Authors Cited by (13) Tweetations (24) Metrics

Journals

  1. Viberg Johansson J, Shah N, Haraldsdóttir E, Bentzen H, Coy S, Kaye J, Mascalzoni D, Veldwijk J. Governance mechanisms for sharing of health data: An approach towards selecting attributes for complex discrete choice experiment studies. Technology in Society 2021;66:101625 View
  2. Viberg Johansson J, Bentzen H, Mascalzoni D. What ethical approaches are used by scientists when sharing health data? An interview study. BMC Medical Ethics 2022;23(1) View
  3. El-Toukhy S, Pike J, Zuckerman G, Hegeman P. Decision Trade-Offs in Ecological Momentary Assessments and Digital Wearables Uptake: Protocol for a Discrete Choice Experiment. JMIR Research Protocols 2023;12:e47567 View
  4. Fischer A, Mühlbacher A. Patient and Public Acceptance of Digital Technologies in Health Care: Protocol for a Discrete Choice Experiment. JMIR Research Protocols 2023;12:e46056 View
  5. Muller S, van Thiel G, Mostert M, van Delden J. Dynamic consent, communication and return of results in large-scale health data reuse: Survey of public preferences. DIGITAL HEALTH 2023;9 View
  6. Biasiotto R, Viberg Johansson J, Alemu M, Romano V, Bentzen H, Kaye J, Ancillotti M, Blom J, Chassang G, Hallinan D, Jónsdóttir G, Monasterio Astobiza A, Rial-Sebbag E, Rodríguez-Arias D, Shah N, Skovgaard L, Staunton C, Tschigg K, Veldwijk J, Mascalzoni D. Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries. Journal of Medical Internet Research 2023;25:e47066 View
  7. Viberg Johansson J, Dembrower K, Strand F, Grauman Å. Women’s perceptions and attitudes towards the use of AI in mammography in Sweden: a qualitative interview study. BMJ Open 2024;14(2):e084014 View
  8. Lalova-Spinks T, Saesen R, Silva M, Geissler J, Shakhnenko I, Camaradou J, Huys I. Patients’ knowledge, preferences, and perspectives about data protection and data control: an exploratory survey. Frontiers in Pharmacology 2024;14 View
  9. Sermontyte-Baniule R, Helander N, Nieminen H. A Literature Perspective of Stakeholder’s Perceptions of Value and Risks for the Secondary Use of Health Data. SN Computer Science 2024;5(3) View
  10. Frem M, Petrontino A, Fucilli V, De Lucia B, Tria E, Campobasso A, Calderoni F, Bozzo F. Consumers’ Perceptions for an Outdoor Ornamental Plant: Exploring the Influence of Novel Plant Diseases Diagnostics and Sustainable Nurseries Cultivation Management. Horticulturae 2024;10(5):501 View
  11. Richter G, Krawczak M. How to Elucidate Consent-Free Research Use of Medical Data: A Case for “Health Data Literacy”. JMIR Medical Informatics 2024;12:e51350 View
  12. Staunton C, Biasiotto R, Tschigg K, Mascalzoni D. Artificial Intelligence Needs Data: Challenges Accessing Italian Databases to Train AI. Asian Bioethics Review 2024;16(3):423 View

Books/Policy Documents

  1. Richter G, Rogge A, Wolf A. Health Data Management. View