Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

Authors of this article:

Raphael Scheible^{1, 2} ;   Dennis Kadioglu³ ;   Stephan Ehl² ;   Marco Blum¹ ;   Martin Boeker¹ ;   Michael Folz³ ;   Bodo Grimbacher^{2, 4, 5, 6} ;   Jens Göbel³ ;   Christoph Klein⁷ ;   Alexandra Nieters^{2, 8} ;   Stephan Rusch^{2, 8} ;   Gerhard Kindle^{2, 8} ;   Holger Storf³