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Research Infrastructures and Registries (85) Secondary Use of Clinical Data for Research and Surveillance (514)

Published on in Vol 8, No 10 (2020): October

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17420, first published .
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Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

Authors of this article:

Raphael Scheible1, 2 Author Orcid Image ;   Dennis Kadioglu3 Author Orcid Image ;   Stephan Ehl2 Author Orcid Image ;   Marco Blum1 Author Orcid Image ;   Martin Boeker1 Author Orcid Image ;   Michael Folz3 Author Orcid Image ;   Bodo Grimbacher2, 4, 5, 6 Author Orcid Image ;   Jens Göbel3 Author Orcid Image ;   Christoph Klein7 Author Orcid Image ;   Alexandra Nieters2, 8 Author Orcid Image ;   Stephan Rusch2, 8 Author Orcid Image ;   Gerhard Kindle2, 8 Author Orcid Image ;   Holger Storf3 Author Orcid Image
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