This paper is in the following e-collection/theme issue:

Research Infrastructures and Registries (59) Secondary Use of Clinical Data for Research and Surveillance (366)

Published on in Vol 8, No 10 (2020): October

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17420, first published .
Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

Enabling External Inquiries to an Existing Patient Registry by Using the Open Source Registry System for Rare Diseases: Demonstration of the System Using the European Society for Immunodeficiencies Registry

Authors of this article:

Raphael Scheible1, 2 Author Orcid Image ;   Dennis Kadioglu3 Author Orcid Image ;   Stephan Ehl2 Author Orcid Image ;   Marco Blum1 Author Orcid Image ;   Martin Boeker1 Author Orcid Image ;   Michael Folz3 Author Orcid Image ;   Bodo Grimbacher2, 4, 5, 6 Author Orcid Image ;   Jens Göbel3 Author Orcid Image ;   Christoph Klein7 Author Orcid Image ;   Alexandra Nieters2, 8 Author Orcid Image ;   Stephan Rusch2, 8 Author Orcid Image ;   Gerhard Kindle2, 8 Author Orcid Image ;   Holger Storf3 Author Orcid Image
Article Authors Cited by (3) Tweetations (1) Metrics

Altmetric

Altmetric discovers Social Media mentions. Click the ‘See more details’ link for a full report.

Dimensions

Dimensions discovers Citations. Click the ‘details’ link for a full report.

Metrics Since Publication

Download .csv
Daily | Monthly | Annually