Published on in Vol 4, No 2 (2016): Apr-Jun
Journals
- Jones K, Daniels H, Heys S, Lacey A, Ford D. Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review. Journal of Medical Internet Research 2020;22(5):e16346 View
- van Veen E. Observational health research in Europe: understanding the General Data Protection Regulation and underlying debate. European Journal of Cancer 2018;104:70 View
- Shah T, Wilson L, Booth N, Butters O, McDonald J, Common K, Martin M, Minion J, Burton P, Murtagh M. Information-sharing in health and social care: Lessons from a socio-technical initiative. Public Money & Management 2019;39(5):359 View
- Ioannidis J, Bhattacharya S, Evers J, der Veen F, Somigliana E, Barratt C, Bontempi G, Baird D, Crosignani P, Devroey P, Diedrich K, Farquharson R, Fraser L, Geraedts J, Gianaroli L, La Vecchia C, Magli C, Negri E, Sunde A, Tapanainen J, Tarlatzis B, Steirteghem A, Veiga A. Protect us from poor-quality medical research. Human Reproduction 2018;33(5):770 View
- Henare K, Parker K, Wihongi H, Blenkiron C, Jansen R, Reid P, Findlay M, Lawrence B, Hudson M, Print C. Mapping a route to Indigenous engagement in cancer genomic research. The Lancet Oncology 2019;20(6):e327 View
- Kalkman S, Mostert M, Gerlinger C, van Delden J, van Thiel G. Responsible data sharing in international health research: a systematic review of principles and norms. BMC Medical Ethics 2019;20(1) View
- Jones K, Laurie G, Stevens L, Dobbs C, Ford D, Lea N. The other side of the coin: Harm due to the non-use of health-related data. International Journal of Medical Informatics 2017;97:43 View
- Robertson D, Giunchiglia F, Pavis S, Turra E, Bella G, Elliot E, Morris A, Atkinson M, McAllister G, Manataki A, Papapanagiotou P, Parsons M. Healthcare data safe havens: towards a logical architecture and experiment automation. The Journal of Engineering 2016;2016(11):431 View
- Foster J, McLeod J, Nolin J, Greifeneder E. Data work in context: Value, risks, and governance. Journal of the Association for Information Science and Technology 2018;69(12):1414 View
- Heeney C, Kerr S. Balancing the local and the universal in maintaining ethical access to a genomics biobank. BMC Medical Ethics 2017;18(1) View
- McDonnell L, Delaney B, Sullivan F. Finding and using routine clinical datasets for observational research and quality improvement. British Journal of General Practice 2018;68(668):147 View
- Peek N, Rodrigues P. Three controversies in health data science. International Journal of Data Science and Analytics 2018;6(3):261 View
- Jones K, Daniels H, Squires E, Ford D. Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study. Journal of Medical Internet Research 2019;21(8):e14384 View
- Nind T, Sutherland J, McAllister G, Hardy D, Hume A, MacLeod R, Caldwell J, Krueger S, Tramma L, Teviotdale R, Abdelatif M, Gillen K, Ward J, Scobbie D, Baillie I, Brooks A, Prodan B, Kerr W, Sloan-Murphy D, Herrera J, McManus D, Morris C, Sinclair C, Baxter R, Parsons M, Morris A, Jefferson E. An extensible big data software architecture managing a research resource of real-world clinical radiology data linked to other health data from the whole Scottish population. GigaScience 2020;9(10) View
- Domingues M, Camacho R, Rodrigues P. CMIID: A comprehensive medical information identifier for clinical search harmonization in Data Safe Havens. Journal of Biomedical Informatics 2021;114:103669 View
- Avraam D, Wilson R, Butters O, Burton T, Nicolaides C, Jones E, Boyd A, Burton P. Privacy preserving data visualizations. EPJ Data Science 2021;10(1) View
- Daniels H, Jones K, Heys S, Ford D. Exploring the Use of Genomic and Routinely Collected Data: Narrative Literature Review and Interview Study. Journal of Medical Internet Research 2021;23(9):e15739 View
- Wagner S, Hughes F, Cortina-Borja M, Pontikos N, Struyven R, Liu X, Montgomery H, Alexander D, Topol E, Petersen S, Balaskas K, Hindley J, Petzold A, Rahi J, Denniston A, Keane P. AlzEye: longitudinal record-level linkage of ophthalmic imaging and hospital admissions of 353 157 patients in London, UK. BMJ Open 2022;12(3):e058552 View
- Avraam D, Jones E, Burton P. A deterministic approach for protecting privacy in sensitive personal data. BMC Medical Informatics and Decision Making 2022;22(1) View
- Boyer P, Donia J, Whyne C, Burns D, Shaw J. Regulatory regimes and procedural values for health-related motion data in the United States and Canada. Health Policy and Technology 2022;11(3):100648 View
- Kavianpour S, Sutherland J, Mansouri-Benssassi E, Coull N, Jefferson E. Next-Generation Capabilities in Trusted Research Environments: Interview Study. Journal of Medical Internet Research 2022;24(9):e33720 View
- Mapulanga P. Assessing health research institutions' knowledge transfer strategies from a developing country perspective: the case of Malawi. Emerald Open Research 2022;4:31 View
- Gao C, McGilchrist M, Mumtaz S, Hall C, Anderson L, Zurowski J, Gordon S, Lumsden J, Munro V, Wozniak A, Sibley M, Banks C, Duncan C, Linksted P, Hume A, Stables C, Mayor C, Caldwell J, Wilde K, Cole C, Jefferson E. A National Network of Safe Havens: Scottish Perspective. Journal of Medical Internet Research 2022;24(3):e31684 View
- Igumbor J, Bosire E, Vicente-Crespo M, Igumbor E, Olalekan U, Chirwa T, Kinyanjui S, Kyobutungi C, Fonn S. Considerations for an integrated population health databank in Africa: lessons from global best practices. Wellcome Open Research 2021;6:214 View
- Demmler J, Brophy S, Marchant A, John A, Tan J. Shining the light on eating disorders, incidence, prognosis and profiling of patients in primary and secondary care: national data linkage study. The British Journal of Psychiatry 2020;216(2):105 View
- Kerasidou C, Malone M, Daly A, Tava F. Machine learning models, trusted research environments and UK health data: ensuring a safe and beneficial future for AI development in healthcare. Journal of Medical Ethics 2023;49(12):838 View
- Radosevic N, Duckham M, Saiedur Rahaman M, Ho S, Williams K, Hashem T, Tao Y. Spatial data trusts: an emerging governance framework for sharing spatial data. International Journal of Digital Earth 2023;16(1):1607 View
- Mapulanga P. Assessing health research institutions' knowledge transfer strategies from a developing country perspective: the case of Malawi. Emerald Open Research 2023;1(2) View
- Mapulanga P. Assessing health research institutions' knowledge transfer strategies from a developing country perspective: the case of Malawi. Emerald Open Research 2023;1(2) View
- Willison D, Trowbridge J, Greiver M, Keshavjee K, Mumford D, Sullivan F. Participatory governance over research in an academic research network: the case of Diabetes Action Canada. BMJ Open 2019;9(4):e026828 View