Published on in Vol 4 , No 2 (2016) :Apr-Jun

Data Safe Havens and Trust: Toward a Common Understanding of Trusted Research Platforms for Governing Secure and Ethical Health Research

Data Safe Havens and Trust: Toward a Common Understanding of Trusted Research Platforms for Governing Secure and Ethical Health Research

Data Safe Havens and Trust: Toward a Common Understanding of Trusted Research Platforms for Governing Secure and Ethical Health Research

Journals

  1. Jones K, Daniels H, Heys S, Lacey A, Ford D. Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review. Journal of Medical Internet Research 2020;22(5):e16346 View
  2. van Veen E. Observational health research in Europe: understanding the General Data Protection Regulation and underlying debate. European Journal of Cancer 2018;104:70 View
  3. Shah T, Wilson L, Booth N, Butters O, McDonald J, Common K, Martin M, Minion J, Burton P, Murtagh M. Information-sharing in health and social care: Lessons from a socio-technical initiative. Public Money & Management 2019;39(5):359 View
  4. Ioannidis J, Bhattacharya S, Evers J, der Veen F, Somigliana E, Barratt C, Bontempi G, Baird D, Crosignani P, Devroey P, Diedrich K, Farquharson R, Fraser L, Geraedts J, Gianaroli L, La Vecchia C, Magli C, Negri E, Sunde A, Tapanainen J, Tarlatzis B, Steirteghem A, Veiga A. Protect us from poor-quality medical research. Human Reproduction 2018;33(5):770 View
  5. Henare K, Parker K, Wihongi H, Blenkiron C, Jansen R, Reid P, Findlay M, Lawrence B, Hudson M, Print C. Mapping a route to Indigenous engagement in cancer genomic research. The Lancet Oncology 2019;20(6):e327 View
  6. Kalkman S, Mostert M, Gerlinger C, van Delden J, van Thiel G. Responsible data sharing in international health research: a systematic review of principles and norms. BMC Medical Ethics 2019;20(1) View
  7. Jones K, Laurie G, Stevens L, Dobbs C, Ford D, Lea N. The other side of the coin: Harm due to the non-use of health-related data. International Journal of Medical Informatics 2017;97:43 View
  8. Robertson D, Giunchiglia F, Pavis S, Turra E, Bella G, Elliot E, Morris A, Atkinson M, McAllister G, Manataki A, Papapanagiotou P, Parsons M. Healthcare data safe havens: towards a logical architecture and experiment automation. The Journal of Engineering 2016;2016(11):431 View
  9. Foster J, McLeod J, Nolin J, Greifeneder E. Data work in context: Value, risks, and governance. Journal of the Association for Information Science and Technology 2018;69(12):1414 View
  10. Heeney C, Kerr S. Balancing the local and the universal in maintaining ethical access to a genomics biobank. BMC Medical Ethics 2017;18(1) View
  11. McDonnell L, Delaney B, Sullivan F. Finding and using routine clinical datasets for observational research and quality improvement. British Journal of General Practice 2018;68(668):147 View
  12. Peek N, Rodrigues P. Three controversies in health data science. International Journal of Data Science and Analytics 2018;6(3):261 View
  13. Jones K, Daniels H, Squires E, Ford D. Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study. Journal of Medical Internet Research 2019;21(8):e14384 View
  14. Nind T, Sutherland J, McAllister G, Hardy D, Hume A, MacLeod R, Caldwell J, Krueger S, Tramma L, Teviotdale R, Abdelatif M, Gillen K, Ward J, Scobbie D, Baillie I, Brooks A, Prodan B, Kerr W, Sloan-Murphy D, Herrera J, McManus D, Morris C, Sinclair C, Baxter R, Parsons M, Morris A, Jefferson E. An extensible big data software architecture managing a research resource of real-world clinical radiology data linked to other health data from the whole Scottish population. GigaScience 2020;9(10) View
  15. Domingues M, Camacho R, Rodrigues P. CMIID: A comprehensive medical information identifier for clinical search harmonization in Data Safe Havens. Journal of Biomedical Informatics 2021;114:103669 View
  16. Avraam D, Wilson R, Butters O, Burton T, Nicolaides C, Jones E, Boyd A, Burton P. Privacy preserving data visualizations. EPJ Data Science 2021;10(1) View