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Implementation Report (132) Health Information Exchange (228) eHealth Infrastructures (496) Secondary Use of Clinical Data for Research and Surveillance (635) Ophthalmology (118) Standards and Interoperability (221) Health Information Governance (123)

Published on in Vol 14 (2026)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/99206, first published .
Ophthalmologists examine OCT scans of the retina on a computer screen.

Building a National Interoperable Rare Eye Disease Data Warehouse: Methodological Framework and Implementation Report From the French Rare Eye Disease Database (FREDD) Initiative

Building a National Interoperable Rare Eye Disease Data Warehouse: Methodological Framework and Implementation Report From the French Rare Eye Disease Database (FREDD) Initiative

Authors of this article:

Camille Beluffi Marin1 Author Orcid Image ;   Marilyne Oswald2 Author Orcid Image ;   Laura Ratenet2 Author Orcid Image ;   Matthieu Stoll2 Author Orcid Image ;   Kirsley Chennen1 Author Orcid Image ;   Nathalie Chabin3 Author Orcid Image ;   Julie Hubert3 Author Orcid Image ;   Grégoire Rey3 Author Orcid Image ;   Guylène Le Meur4 Author Orcid Image ;   Vasily Smirnov5 Author Orcid Image ;   Isabelle Meunier6 Author Orcid Image ;   Isabelle Audo7 Author Orcid Image ;   Hélène Dollfus8 Author Orcid Image
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