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This paper is in the following e-collection/theme issue:

Viewpoints on and Experiences with Digital Technologies in Health (299) E-Health Policy and Health Systems Innovation (543) Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (1031) eHealth Literacy / Digital Literacy (905) Case Study (84) Secondary Use of Clinical Data for Research and Surveillance (645)

Published on in Vol 12 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/51350, first published .
Doctor and patient looking at tablet, discussing healthcare options.

How to Elucidate Consent-Free Research Use of Medical Data: A Case for “Health Data Literacy”

How to Elucidate Consent-Free Research Use of Medical Data: A Case for “Health Data Literacy”

Authors of this article:

Gesine Richter1, 2 Author Orcid Image ;   Michael Krawczak3 Author Orcid Image
Article Authors Cited by (2) Tweetations (4) Metrics

Journals

  1. Lee D, Jang W. Digital Literacy and Interpersonal Trust as Predictors of Willingness to Share Patient-Generated Health Data Among Korean Internet Users: Cross-Sectional Study Using Privacy Calculus and Communication Privacy Management Theories. Journal of Medical Internet Research 2026;28:e75448 View
  2. Martani A, Skovgaard L, Neubert J, Richter G, Marelli L. The 2025 European Health Data Space Regulation: implementation challenges in harmonising opt-out rules for reusing health data. Health Policy 2026:105764 View