This paper is in the following e-collection/theme issue:

New Technologies (95) Blockchain, Distributed Ledger Apps for Health and Medicine (88) Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (636) Ethics, Privacy, and Legal Issues (545) Genomics and Bioinformatics for Clinical Use (36)

Published on in Vol 9, No 11 (2021): November

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/27816, first published .
A Blockchain-Based Dynamic Consent Architecture to Support Clinical Genomic Data Sharing (ConsentChain): Proof-of-Concept Study

A Blockchain-Based Dynamic Consent Architecture to Support Clinical Genomic Data Sharing (ConsentChain): Proof-of-Concept Study

A Blockchain-Based Dynamic Consent Architecture to Support Clinical Genomic Data Sharing (ConsentChain): Proof-of-Concept Study

Authors of this article:

Faisal Albalwy1, 2, 3 Author Orcid Image ;   Andrew Brass1, 3 Author Orcid Image ;   Angela Davies3 Author Orcid Image
Article Authors Cited by (25) Tweetations (13) Metrics

Journals

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  2. Kuo T, Jiang X, Tang H, Wang X, Harmanci A, Kim M, Post K, Bu D, Bath T, Kim J, Liu W, Chen H, Ohno-Machado L. The evolving privacy and security concerns for genomic data analysis and sharing as observed from the iDASH competition. Journal of the American Medical Informatics Association 2022;29(12):2182 View
  3. Huh K, Jeong S, Moon S, Kim M, Yang W, Jeong M, Song I, Kwak Y, Lee S, Kim M. METORY: Development of a Demand-Driven Blockchain-Based Dynamic Consent Platform Tailored for Clinical Trials. Frontiers in Medicine 2022;9 View
  4. Li C, Liu J, Qian G, Wang Z, Han J. Double chain system for online and offline medical data sharing viaprivate and consortium blockchain: A system design study. Frontiers in Public Health 2022;10 View
  5. Alqarni K, Almalki F, Soufiene B, Ali O, Albalwy F, Zhang Y. Authenticated Wireless Links between a Drone and Sensors Using a Blockchain: Case of Smart Farming. Wireless Communications and Mobile Computing 2022;2022:1 View
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  7. Dong Y, Mun S, Wang Y. A blockchain-enabled sharing platform for personal health records. Heliyon 2023;9(7):e18061 View
  8. Lee A, Koo D, Kim I, Lee E, Kim H, Yoo S, Kim J, Choi E, Lee H. Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review. BMC Medical Ethics 2023;24(1) View
  9. Charles W, van der Waal M, Flach J, Bisschop A, van der Waal R, Es-Sbai H, McLeod C. Blockchain-Based Dynamic Consent and its Applications for Patient-Centric Research and Health Information Sharing: Protocol for an Integrative Review. JMIR Research Protocols 2024;13:e50339 View
  10. Khalid M, Ahmed M, Helfert M, Kim J. Privacy-First Paradigm for Dynamic Consent Management Systems: Empowering Data Subjects through Decentralized Data Controllers and Privacy-Preserving Techniques. Electronics 2023;12(24):4973 View
  11. Zatti F. Blockchains and Dynamic Consent in Biobanking. SSRN Electronic Journal 2021 View
  12. Ghosh A, Mukhopadhyay I, Chakraborty S. Design and Architectural Implementation of Consortium Blockchain Based Framework for Open Banking Customer Consent and Data Handling. SN Computer Science 2024;5(2) View
  13. Oliva A, Kaphle A, Reguant R, Sng L, Twine N, Malakar Y, Wickramarachchi A, Keller M, Ranbaduge T, Chan E, Breen J, Buckberry S, Guennewig B, Haas M, Brown A, Cowley M, Thorne N, Jain Y, Bauer D. Future-proofing genomic data and consent management: a comprehensive review of technology innovations. GigaScience 2024;13 View
  14. Elhussein A, Baymuradov U, Phatnani H, Kwan J, Sareen D, Broach J, Simmons Z, Arcila-Londono X, Lee E, Van Deerlin V, Shneider N, Fraenkel E, Ostrow L, Baas F, Zaitlen N, Berry J, Malaspina A, Fratta P, Cox G, Thompson L, Finkbeiner S, Dardiotis E, Miller T, Chandran S, Pal S, Hornstein E, MacGowan D, Heiman-Patterson T, Hammell M, Patsopoulos N, Dubnau J, Nath A, Bowser R, Harms M, Aronica E, Poss M, Phillips-Cremins J, Crary J, Atassi N, Lange D, Adams D, Stefanis L, Gotkine M, Baloh R, Babu S, Raj T, Paganoni S, Shalem O, Smith C, Bin Zhang , Harris B, Broce I, Drory V, Ravits J, McMillan C, Menon V, Wu L, Altschuler S, Lerner Y, Sattler R, Van Keuren-Jensen K, Rozenblatt-Rosen O, Lindblad-Toh K, Nicholson K, Gregersen P, Elhadad N, Natarajan K, Gürsoy G. A framework for sharing of clinical and genetic data for precision medicine applications. Nature Medicine 2024;30(12):3578 View
  15. Lin J, Liu Y, Hsiao W, Fan C. Integrating Population-Based Biobanks: Catalyst for Advances in Precision Health. Computational and Structural Biotechnology Journal 2024 View
  16. Mishra D, Mehra P. DiabeticChain: a novel blockchain approach for patient-centric diabetic data management. The Journal of Supercomputing 2025;81(1) View
  17. Singh A, Rathee G. Smart contract empowered dynamic consent: decentralized storage and access control for healthcare applications. Peer-to-Peer Networking and Applications 2025;18(1) View
  18. Musamih A, Salah K, Jayaraman R, Ellaham S, Omar M, Yaqoob I. Blockchain and NFT-Based Solution for Genomic Data Management, Sharing, and Monetization. IEEE Access 2025;13:35780 View
  19. Nguyen T, Hsieh Y, Tseng C, Lin Y, Yuan S. Blockchain-Enabled Privacy-Preserving Ecosystem for DNA Sequence Sharing. Applied Sciences 2025;15(6):3193 View

Books/Policy Documents

  1. Zatti F. GDPR Requirements for Biobanking Activities Across Europe. View
  2. Charles W. Blockchain in Healthcare. View
  3. Zhang F. Software Engineering Methods Design and Application. View

Conference Proceedings

  1. Agrawal K, Aggarwal M. 2023 International Conference on Computer Communication and Informatics (ICCCI). Blockchain Applications in Healthcare- Recent Advancements View
  2. Khalid M, Ahmed M. 2023 IEEE International Smart Cities Conference (ISC2). Blockchain Based Dynamic Consent Management Systems for Enhancing Quality of Life for People with Disabilities View
  3. Javed I, Lemieux V, Regier D. 2024 International Conference on Smart Applications, Communications and Networking (SmartNets). SecureConsent: A Blockchain-Based Dynamic and Secure Consent Management for Genomic Data Sharing View