Published on 21.06.16 in Vol 4, No 2 (2016): Apr-Jun
Works citing "Data Safe Havens and Trust: Toward a Common Understanding of Trusted Research Platforms for Governing Secure and Ethical Health Research"
According to Crossref, the following articles are citing this article (DOI 10.2196/medinform.5571):
(note that this is only a small subset of citations)
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Jones K, Daniels H, Heys S, Lacey A, Ford DV. Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review. Journal of Medical Internet Research 2020;22(5):e16346
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. Observational health research in Europe: understanding the General Data Protection Regulation and underlying debate. European Journal of Cancer 2018;104:70
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Shah T, Wilson L, Booth N, Butters O, McDonald J, Common K, Martin M, Minion J, Burton P, Murtagh M. Information-sharing in health and social care: Lessons from a socio-technical initiative. Public Money & Management 2019;39(5):359
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Ioannidis JPA, Bhattacharya S, Evers JLH, der Veen FV, Somigliana E, Barratt CLR, Bontempi G, Baird DT, Crosignani P, Devroey P, Diedrich K, Farquharson RG, Fraser LR, Geraedts JPM, Gianaroli L, La Vecchia C, Magli C, Negri E, Sunde A, Tapanainen JS, Tarlatzis BC, Steirteghem AV, Veiga A. Protect us from poor-quality medical research. Human Reproduction 2018;33(5):770
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Henare KL, Parker KE, Wihongi H, Blenkiron C, Jansen R, Reid P, Findlay MP, Lawrence B, Hudson M, Print CG. Mapping a route to Indigenous engagement in cancer genomic research. The Lancet Oncology 2019;20(6):e327
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Kalkman S, Mostert M, Gerlinger C, van Delden JJM, van Thiel GJMW. Responsible data sharing in international health research: a systematic review of principles and norms. BMC Medical Ethics 2019;20(1)
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Jones KH, Laurie G, Stevens L, Dobbs C, Ford DV, Lea N. The other side of the coin: Harm due to the non-use of health-related data. International Journal of Medical Informatics 2017;97:43
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Robertson D, Giunchiglia F, Pavis S, Turra E, Bella G, Elliot E, Morris A, Atkinson M, McAllister G, Manataki A, Papapanagiotou P, Parsons M. Healthcare data safe havens: towards a logical architecture and experiment automation. The Journal of Engineering 2016;2016(11):431
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Foster J, McLeod J, Nolin J, Greifeneder E. Data work in context: Value, risks, and governance. Journal of the Association for Information Science and Technology 2018;69(12):1414
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Heeney C, Kerr SM. Balancing the local and the universal in maintaining ethical access to a genomics biobank. BMC Medical Ethics 2017;18(1)
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McDonnell L, Delaney BC, Sullivan F. Finding and using routine clinical datasets for observational research and quality improvement. British Journal of General Practice 2018;68(668):147
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Peek N, Rodrigues PP. Three controversies in health data science. International Journal of Data Science and Analytics 2018;6(3):261
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Jones KH, Daniels H, Squires E, Ford DV. Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study. Journal of Medical Internet Research 2019;21(8):e14384
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Nind T, Sutherland J, McAllister G, Hardy D, Hume A, MacLeod R, Caldwell J, Krueger S, Tramma L, Teviotdale R, Abdelatif M, Gillen K, Ward J, Scobbie D, Baillie I, Brooks A, Prodan B, Kerr W, Sloan-Murphy D, Herrera JFR, McManus D, Morris C, Sinclair C, Baxter R, Parsons M, Morris A, Jefferson E. An extensible big data software architecture managing a research resource of real-world clinical radiology data linked to other health data from the whole Scottish population. GigaScience 2020;9(10)
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Domingues MA, Camacho R, Rodrigues PP. CMIID: A comprehensive medical information identifier for clinical search harmonization in Data Safe Havens. Journal of Biomedical Informatics 2021;114:103669
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Avraam D, Wilson R, Butters O, Burton T, Nicolaides C, Jones E, Boyd A, Burton P. Privacy preserving data visualizations. EPJ Data Science 2021;10(1)
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Daniels H, Jones KH, Heys S, Ford DV. Exploring the Use of Genomic and Routinely Collected Data: Narrative Literature Review and Interview Study. Journal of Medical Internet Research 2021;23(9):e15739
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Wagner SK, Hughes F, Cortina-Borja M, Pontikos N, Struyven R, Liu X, Montgomery H, Alexander DC, Topol E, Petersen SE, Balaskas K, Hindley J, Petzold A, Rahi JS, Denniston AK, Keane PA. AlzEye: longitudinal record-level linkage of ophthalmic imaging and hospital admissions of 353 157 patients in London, UK. BMJ Open 2022;12(3):e058552
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Avraam D, Jones E, Burton P. A deterministic approach for protecting privacy in sensitive personal data. BMC Medical Informatics and Decision Making 2022;22(1)
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Boyer P, Donia J, Whyne C, Burns D, Shaw J. Regulatory regimes and procedural values for health-related motion data in the United States and Canada. Health Policy and Technology 2022;11(3):100648
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Kavianpour S, Sutherland J, Mansouri-Benssassi E, Coull N, Jefferson E. Next-Generation Capabilities in Trusted Research Environments: Interview Study. Journal of Medical Internet Research 2022;24(9):e33720
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. Assessing health research institutions' knowledge transfer strategies from a developing country perspective: the case of Malawi. Emerald Open Research 2022;4:31
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Gao C, McGilchrist M, Mumtaz S, Hall C, Anderson LA, Zurowski J, Gordon S, Lumsden J, Munro V, Wozniak A, Sibley M, Banks C, Duncan C, Linksted P, Hume A, Stables CL, Mayor C, Caldwell J, Wilde K, Cole C, Jefferson E. A National Network of Safe Havens: Scottish Perspective. Journal of Medical Internet Research 2022;24(3):e31684
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Igumbor JO, Bosire EN, Vicente-Crespo M, Igumbor EU, Olalekan UA, Chirwa TF, Kinyanjui SM, Kyobutungi C, Fonn S. Considerations for an integrated population health databank in Africa: lessons from global best practices. Wellcome Open Research 2021;6:214
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Demmler JC, Brophy ST, Marchant A, John A, Tan JOA. Shining the light on eating disorders, incidence, prognosis and profiling of patients in primary and secondary care: national data linkage study. The British Journal of Psychiatry 2020;216(2):105
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Kerasidou C, Malone M, Daly A, Tava F. Machine learning models, trusted research environments and UK health data: ensuring a safe and beneficial future for AI development in healthcare. Journal of Medical Ethics 2023;49(12):838
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Radosevic N, Duckham M, Saiedur Rahaman M, Ho S, Williams K, Hashem T, Tao Y. Spatial data trusts: an emerging governance framework for sharing spatial data. International Journal of Digital Earth 2023;16(1):1607
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. Assessing health research institutions' knowledge transfer strategies from a developing country perspective: the case of Malawi. Emerald Open Research 2023;1(2)
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. Assessing health research institutions' knowledge transfer strategies from a developing country perspective: the case of Malawi. Emerald Open Research 2023;1(2)
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According to Crossref, the following books are citing this article (DOI 10.2196/medinform.5571):
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Day S, Smith J, Ward H. Figure. 2022. Chapter 8:149
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