TY  - JOUR
AU  - Weile, Kathrine Synne
AU  - Mathiasen, René
AU  - Winther, Jeanette Falck
AU  - Hasle, Henrik
AU  - Henriksen, Louise Tram
PY  - 2024
DA  - 2024/7/25
TI  - Hjernetegn.dk—The Danish Central Nervous System Tumor Awareness Initiative Digital Decision Support Tool: Design and Implementation Report
JO  - JMIR Med Inform
SP  - e58886
VL  - 12
KW  - digital health initiative
KW  - digital health initiatives
KW  - clinical decision support
KW  - decision support
KW  - decision support system
KW  - decision support systems
KW  - decision support tool
KW  - decision support tools
KW  - diagnostic delay
KW  - awareness initiative
KW  - pediatric neurology
KW  - pediatric CNS tumors
KW  - CNS tumor
KW  - CNS tumour
KW  - CNS tumours
KW  - co-creation
KW  - health systems and services
KW  - communication
KW  - central nervous system
AB  - Background: Childhood tumors in the central nervous system (CNS) have longer diagnostic delays than other pediatric tumors. Vague presenting symptoms pose a challenge in the diagnostic process; it has been indicated that patients and parents may be hesitant to seek help, and health care professionals (HCPs) may lack awareness and knowledge about clinical presentation. To raise awareness among HCPs, the Danish CNS tumor awareness initiative hjernetegn.dk was launched. Objective: This study aims to present the learnings from designing and implementing a decision support tool for HCPs to reduce diagnostic delay in childhood CNS tumors. The aims also include decisions regarding strategies for dissemination and use of social media, and an evaluation of the digital impact 6 months after launch. Methods: The phases of developing and implementing the tool include participatory co-creation workshops, designing the website and digital platforms, and implementing a press and media strategy. The digital impact of hjernetegn.dk was evaluated through website analytics and social media engagement. Implementation (Results): hjernetegn.dk was launched in August 2023. The results after 6 months exceeded key performance indicators. The analysis showed a high number of website visitors and engagement, with a plateau reached 3 months after the initial launch. The LinkedIn campaign and Google Search strategy also generated a high number of impressions and clicks. Conclusions: The findings suggest that the initiative has been successfully integrated, raising awareness and providing a valuable tool for HCPs in diagnosing childhood CNS tumors. The study highlights the importance of interdisciplinary collaboration, co-creation, and ongoing community management, as well as broad dissemination strategies when introducing a digital support tool. 
SN  - 2291-9694
UR  - https://medinform.jmir.org/2024/1/e58886
UR  - https://doi.org/10.2196/58886
DO  - 10.2196/58886
ID  - info:doi/10.2196/58886
ER  -